Blog Index

DEFERRAL NEEDED FOR PROPER ICD PROPOSAL EVALUATION 12 October 2018
SEID Classification Usurping ME Must Be Stopped 6 October 2018
DROPPING THE CURTAIN ON CFSAC 19 September 2018
Help us Revitalize our Website & Further Advocacy Work 01 August 2018
Request to Sign Petition #PwME4ICC & Other News 29 July 2018
The 26th ME Awareness Day: Still Fighting Unscientific Claims 11 May 2018
MEadvocacy's Comment To NINDS/CDC CDEs Draft & See What You Can Do 30 January 2018
Advocacy Lessons Learned from Martin Luther King, Jr. as We Honor Him 15 January 2018
Testifying at CFSAC Dec 2017 and Looking for Changes in 2018 08 January 2018
CDC's Website Revision is No Reason for Celebration 28 September 2017
TruthCures Lobbies Washington, DC to Meet with Senate Judiciary Members 06 June 2017
May 12, 2017 International Awareness Day- 25th Anniversary! 30 April 2017
CDC, You Need a Bigger Ear Horn 01 December 2016
Knocking Down NIH Bias 14 November 2016
Systemic Bias Continues at NIH 06 November 2016
Our Response to Dr. Koroshetz' Refusal to Cancel Lecture by ME Disease Denier 06 November 2016
THE INTERNATIONAL CONSENSUS CRITERIA What is it? Do I fit the criteria? 20 October 2016
Tom Jarrett, ME Patient Advocate, Passes 26 July 2016
Gone Fishin' 19 June 2016
Diseasemaps.org - Let's Put ME on the Map! 17 June 2016
MEadvocacy Reaches Members of Congress 15 June 2016
Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis 14 June 2016
Eileen Holderman CFSAC Public Comment About NIH Study 19 May 2016
Why We Need May Awareness Day - Global Protest and More 10 May 2016
Easy Way to Create May Awareness 02 May 2016
Dutch ME-Community Appeals for Global Help: Sign Petition 15 April 2016
NIH Sidesteps Critical Problems with the ME/CFS Study 27 March 2016
NIH Telebriefing Presentations and Protocol in a Nutshell 09 March 2016
NIH Obliquely Dismissed 725 Voices While Stating that Patients' Input Matters 08 March 2016
How Activism Empowers Progress 04 March 2016
Misinformation About a Disease Has Dire Consequences 25 February 2016
Follow Up Reminder Email to Collins 23 February 2016
The Tale of Two Plagues: A Parable 18 February 2016
NIH and CDC: You've Got Mail 15 February 2016
A Blast From The Past: A Review By Maryann Spurgin, Ph.D. 11 February 2016
Further Analysis of NIH Clinical CFS Study 10 February 2016
NIH Clinical Study: A Case of Continued Institutional Bias 09 February 2016
Further Correspondence with Dr. Unger at CDC 03 February 2016
Introducing Mary Dimmock's Summary: 'Thirty Years of Disdain' 02 February 2016
MEadvocacy Opts Out of CDC’s Technical Development Workgroup 22 January 2016
MEadvocacy Submits Comment to DOL 19 January 2016
Update on the ERISA Disability Changes Blog 31 December 2015
MEadvocacy Statement Regarding the Creation of the US Action Working Group 22 December 2015
Analysis of CFSAC August 2015 Recommendations for the IOM Criteria 20 December 2015
Instead of Sending Me a Holiday Message... 18 December 2015
Why MEAdvocacy Does Not Applaud the News from NIH...Yet 02 December 2015
Tell HHS to Remove Flawed PACE Recommendations from Clinical Guidelines 19 November 2015
Social Security Disability Insolvency Crisis 28 October 2015
2 Easy Ways to Host a Forgotten Plague Movie Screening 26 October 2015
Help Free Karina – Donate To Save4Children 21 October 2015
3 Ways to Help Karina Hansen - ME Hostage in Denmark 19 October 2015
Shocking Canadian ME Statistics and What You Can Do About It (Aviva Contest) 05 October 2015
Donate to Keep MEadvocacy Alive! 23 September 2015
Dr. Davis Debunks NIH's Claims of Fairness 03 September 2015
Giving Testimony to CFSAC and a Call to Do More... 28 August 2015
Tune in to CFSAC to see MEadvocacy and more! 17 August 2015
Severe ME Day: Understanding and Awareness 07 August 2015
Tell Congress We Need An ME Champion 21 July 2015
Ignoring the Voice of the Patients - Business as Usual 29 June 2015
Update on USDOJ Protest by May12.org 26 June 2015
Press Release - Disabled, Chronically Ill to Occupy US Dept. of Justice 29 May 2015
(New Improved!) Tell Congress to Increase Funding for ME Research and more 15 May 2015
May 12 Release of "Forgotten Plague" Theatrical Trailer 15 May 2015
MEadvocacy.org Chomps Chillies for ME 12 May 2015
Want To Get $250 million for ME? Let's Reach Congress Now! 07 May 2015
ME Patients Visible at The Capitol: Pictures and Videos 04 May 2015
May 12th Awareness Events 2015 04 May 2015
April MEadvocacy.org Demonstration Update: Act Up 4 ME! 28 April 2015
Act Up for M.E. - Boots On The Ground In DC 02 April 2015
It’s Time to “Act Up for ME Funding” 20 April 2015
Missed the Hidden Heroes Live Show on ME? 26 March 2015
Hidden Heroes Google + Talk Show Wednesday March 25, 2:30pm PT 23 March 2015
IOM/SEID Analyzed, MEadvocacy.org Clarified 17 March 2015
MEadvocacy on WLWT News 12 March 2015
Need Spokespeople for the Media 08 March 2015
Archive - Donation Page Intro 27 February 2015
MEadvocacy in Washington Post 25 February 2015
Now Is the Time to Stand Up For M.E. 24 February 2015
Tell HHS What You Think of the IOM Committee’s Proposed Name for the Disease Currently Called “ME/CFS” 21 February 2015
IOM Diagnostic Criteria for ME/CFS Preliminary Assessment 13 February 2015
The Strategy Behind Renaming and Redefining Chronic Fatigue Syndrome in 2015 13 February 2015
IOM Diagnostic Criteria for ME/CFS - Live Webcast February 10, 2015, 11am EST 09 February 2015
What Does a True ME Definition Look Like? 02 February 2015
The KnoW M.E. Challenge - Say it. Know it. Cure it! 29 January 2015
National PR Campaign for ME Update 1-26-2015 26 January 2015
Anne Keith on Hidden Heroes Google + Talk Show Today Jan. 22 4pm EST 22 January 2015
P2P and IOM – Born Under a Bad Sign 19 January 2015
Update: National PR Campaign for ME 1-15-2015 15 January 2015
Post Your P2P Comments Here 09 January 2015
If You Mean M.E., Just Say M.E.! 05 January 2015
Andrew's Give with ME Challenge (Myalgic Encephalomyelitis) 02 January 2015
P2P – Sold Down the River in a Canoe With No Paddles 29 December 2014
Disabled Americans Protest US National Institutes of Health's P2P Meeting 09 December 2014
Frequently Asked Questions for the National PR Campaign for ME 25 November 2014
Offensive NIH Flyer Worked Over By ME Patients 25 November 2014
Read The Full PR Campaign Proposal - Get The Rest of the Story 19 November 2014
Send an eCard to Karina Hansen for Nov. 7 04 November 2014
Tell Secretary Burwell To Stop The P2P! 21 October 2014
Two Tier Lyme Testing Doesn't Work 17 October 2014
Send Karina Hansen a Birthday Card 12 October 2014
Joanne Locked Away Against Her Will 12 October 2014
Lyme Vigil and Protest Oct 10-11, Philadelphia, PA, USA 07 October 2014
Vote Daily to Win Money for Research - Aviva Community Fund 04 October 2014
Join the "Stop The P2P" Saturday Tweetstorm 02 October 2014
US District Court: HHS/NIH Violated Federal Law in Response to FOIA Request for IOM Documents 04 September 2014
May 12, 2014 Demonstrations on Youtube 05 August 2014
Cure the CDC - Tell Congress To Investigate 16 Ju;y 2014
Why Join Other Diseases To Cure The CDC 29 June 2014
HHS Appalling Actions Against ME and CFS Patients 29 June 2014
Vote for M.E. Research - Big Break June Contest 03 June 2014
Vote for Research Funding in the Big Break for Charity Contest - Final Days! 26 May 2014
May 5 IOM Open Meeting Boycott and Protest via Thunderclap 30 April 2014
Fully Adopt CCC For ME in N. Ireland - Final Days! 23 March 2014
Great Opportunity - Contact Congress Now 20 March 2014
Promotional Trailer - M.E. Advocacy.org 13 March 2014