May 12, 2024 International Awareness Day - Still Battling US Health Agencies |
10 May 2024 |
May 12: Ongoing Fight to End HHS Crime & Stop Evaporation of ME |
11 May 2023 |
The Forever Flu - Guest blog by Amy McLaughlin |
12 Sept 2022 |
May12.org Ten Year Anniversary |
11 May 2022 |
Anne's Journey of Survival, Perseverance and Hope with 30 Years of ME |
25 May 2021 |
Severe ME Day - August 8, 2020: Desperate Plight Continues in Darkened Rooms |
07 Aug 2020 |
MEadvocacy Advisory Committee Member Selected in Remarkable Women Contest
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19 Mar 2020 |
Rotary Considers Adoption of ME |
7 Oct 2019 |
Every Day Should Be Severe ME Day |
29 August 2019 |
ME Activists meet with HHS - Calls to Action |
19 July 2019 |
Advocating for ME-ICC in Washington, DC |
19 May 2019 |
May 12 International Awareness Day -- A May12.org Guest Blog |
11 May 2019 |
SEID Is Killing ME |
14 March 2019 |
Revitalized Website - Same Focus
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08 March 2019 |
Looking Back and Preparing for Road Ahead
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21 December 2018 |
MEadvocacy's Comments Rejecting Proposed ICD-10-CM Changes
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01 November 2018 |
Deferral Needed for Proper ICD Proposal Evaluation |
12 October 2018 |
SEID Classification Usurping ME Must Be Stopped |
6 October 2018 |
Dropping the Curtain on CFSAC |
19 September 2018 |
Severe ME Day 8th August, 2018: Understanding & Awareness |
07 August 2018 |
Help us Revitalize our Website & Further Advocacy Work |
01 August 2018 |
Request to Sign Petition #PwME4ICC & Other News |
29 July 2018 |
The 26th ME Awareness Day: Still Fighting Unscientific Claims |
11 May 2018 |
MEadvocacy's Comment To NINDS/CDC CDEs Draft & See What You Can Do |
30 January 2018 |
Advocacy Lessons Learned from Martin Luther King, Jr. as We Honor Him |
15 January 2018 |
Testifying at CFSAC Dec 2017 and Looking for Changes in 2018 |
08 January 2018 |
CDC's Website Revision is No Reason for Celebration |
28 September 2017 |
TruthCures Lobbies Washington, DC to Meet with Senate Judiciary Members |
06 June 2017 |
May 12, 2017 International Awareness Day- 25th Anniversary! |
30 April 2017 |
CDC, You Need a Bigger Ear Horn |
01 December 2016 |
Knocking Down NIH Bias |
14 November 2016 |
Systemic Bias Continues at NIH |
06 November 2016 |
Our Response to Dr. Koroshetz' Refusal to Cancel Lecture by ME Disease Denier |
06 November 2016 |
THE INTERNATIONAL CONSENSUS CRITERIA What is it? Do I fit the criteria? |
20 October 2016 |
Tom Jarrett, ME Patient Advocate, Passes |
26 July 2016 |
Gone Fishin' |
19 June 2016 |
Diseasemaps.org - Let's Put ME on the Map! |
17 June 2016 |
MEadvocacy Reaches Members of Congress |
15 June 2016 |
Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis |
14 June 2016 |
Eileen Holderman CFSAC Public Comment About NIH Study |
19 May 2016 |
Why We Need May Awareness Day - Global Protest and More |
10 May 2016 |
Easy Way to Create May Awareness |
02 May 2016 |
Dutch ME-Community Appeals for Global Help: Sign Petition |
15 April 2016 |
NIH Sidesteps Critical Problems with the ME/CFS Study |
27 March 2016 |
NIH Telebriefing Presentations and Protocol in a Nutshell |
09 March 2016 |
NIH Obliquely Dismissed 725 Voices While Stating that Patients' Input Matters |
08 March 2016 |
How Activism Empowers Progress |
04 March 2016 |
Misinformation About a Disease Has Dire Consequences |
25 February 2016 |
Follow Up Reminder Email to Collins |
23 February 2016 |
The Tale of Two Plagues: A Parable |
18 February 2016 |
NIH and CDC: You've Got Mail |
15 February 2016 |
A Blast From The Past: A Review By Maryann Spurgin, Ph.D. |
11 February 2016 |
Further Analysis of NIH Clinical CFS Study |
10 February 2016 |
NIH Clinical Study: A Case of Continued Institutional Bias |
09 February 2016 |
Further Correspondence with Dr. Unger at CDC |
03 February 2016 |
Introducing Mary Dimmock's Summary: 'Thirty Years of Disdain' |
02 February 2016 |
MEadvocacy Opts Out of CDC’s Technical Development Workgroup |
22 January 2016 |
MEadvocacy Submits Comment to DOL |
19 January 2016 |
Update on the ERISA Disability Changes Blog |
31 December 2015 |
MEadvocacy Statement Regarding the Creation of the US Action Working Group |
22 December 2015 |
Analysis of CFSAC August 2015 Recommendations for the IOM Criteria |
20 December 2015 |
Instead of Sending Me a Holiday Message... |
18 December 2015 |
Why MEAdvocacy Does Not Applaud the News from NIH...Yet |
02 December 2015 |
Tell HHS to Remove Flawed PACE Recommendations from Clinical Guidelines |
19 November 2015 |
Social Security Disability Insolvency Crisis |
28 October 2015 |
2 Easy Ways to Host a Forgotten Plague Movie Screening |
26 October 2015 |
Help Free Karina – Donate To Save4Children |
21 October 2015 |
3 Ways to Help Karina Hansen - ME Hostage in Denmark |
19 October 2015 |
Shocking Canadian ME Statistics and What You Can Do About It (Aviva Contest) |
05 October 2015 |
Donate to Keep MEadvocacy Alive! |
23 September 2015 |
Dr. Davis Debunks NIH's Claims of Fairness |
03 September 2015 |
Giving Testimony to CFSAC and a Call to Do More... |
28 August 2015 |
Tune in to CFSAC to see MEadvocacy and more! |
17 August 2015 |
Severe ME Day: Understanding and Awareness |
07 August 2015 |
Tell Congress We Need An ME Champion |
21 July 2015 |
Ignoring the Voice of the Patients - Business as Usual |
29 June 2015 |
Update on USDOJ Protest by May12.org |
26 June 2015 |
Press Release - Disabled, Chronically Ill to Occupy US Dept. of Justice |
29 May 2015 |
(New Improved!) Tell Congress to Increase Funding for ME Research and more |
15 May 2015 |
May 12 Release of "Forgotten Plague" Theatrical Trailer |
15 May 2015 |
MEadvocacy.org Chomps Chillies for ME |
12 May 2015 |
Want To Get $250 million for ME? Let's Reach Congress Now! |
07 May 2015 |
ME Patients Visible at The Capitol: Pictures and Videos |
04 May 2015 |
May 12th Awareness Events 2015 |
04 May 2015 |
April MEadvocacy.org Demonstration Update: Act Up 4 ME! |
28 April 2015 |
Act Up for M.E. - Boots On The Ground In DC |
02 April 2015 |
It’s Time to “Act Up for ME Funding” |
20 April 2015 |
Missed the Hidden Heroes Live Show on ME? |
26 March 2015 |
Hidden Heroes Google + Talk Show Wednesday March 25, 2:30pm PT |
23 March 2015 |
IOM/SEID Analyzed, MEadvocacy.org Clarified |
17 March 2015 |
MEadvocacy on WLWT News |
12 March 2015 |
Need Spokespeople for the Media |
08 March 2015 |
Archive - Donation Page Intro |
27 February 2015 |
MEadvocacy in Washington Post |
25 February 2015 |
Now Is the Time to Stand Up For M.E. |
24 February 2015 |
Tell HHS What You Think of the IOM Committee’s Proposed Name for the Disease Currently Called “ME/CFS” |
21 February 2015 |
IOM Diagnostic Criteria for ME/CFS Preliminary Assessment |
13 February 2015 |
The Strategy Behind Renaming and Redefining Chronic Fatigue Syndrome in 2015 |
13 February 2015 |
IOM Diagnostic Criteria for ME/CFS - Live Webcast February 10, 2015, 11am EST |
09 February 2015 |
What Does a True ME Definition Look Like? |
02 February 2015 |
The KnoW M.E. Challenge - Say it. Know it. Cure it! |
29 January 2015 |
National PR Campaign for ME Update 1-26-2015 |
26 January 2015 |
Anne Keith on Hidden Heroes Google + Talk Show Today Jan. 22 4pm EST |
22 January 2015 |
P2P and IOM – Born Under a Bad Sign |
19 January 2015 |
Update: National PR Campaign for ME 1-15-2015 |
15 January 2015 |
Post Your P2P Comments Here |
09 January 2015 |
If You Mean M.E., Just Say M.E.! |
05 January 2015 |
Andrew's Give with ME Challenge (Myalgic Encephalomyelitis) |
02 January 2015 |
P2P – Sold Down the River in a Canoe With No Paddles |
29 December 2014 |
Disabled Americans Protest US National Institutes of Health's P2P Meeting |
09 December 2014 |
Frequently Asked Questions for the National PR Campaign for ME |
25 November 2014 |
Offensive NIH Flyer Worked Over By ME Patients |
25 November 2014 |
Read The Full PR Campaign Proposal - Get The Rest of the Story |
19 November 2014 |
Send an eCard to Karina Hansen for Nov. 7 |
04 November 2014 |
Tell Secretary Burwell To Stop The P2P! |
21 October 2014 |
Two Tier Lyme Testing Doesn't Work |
17 October 2014 |
Send Karina Hansen a Birthday Card |
12 October 2014 |
Joanne Locked Away Against Her Will |
12 October 2014 |
Lyme Vigil and Protest Oct 10-11, Philadelphia, PA, USA |
07 October 2014 |
Vote Daily to Win Money for Research - Aviva Community Fund |
04 October 2014 |
Join the "Stop The P2P" Saturday Tweetstorm |
02 October 2014 |
US District Court: HHS/NIH Violated Federal Law in Response to FOIA Request for IOM Documents |
04 September 2014 |
May 12, 2014 Demonstrations on Youtube |
05 August 2014 |
Cure the CDC - Tell Congress To Investigate |
16 July 2014 |
Why Join Other Diseases To Cure The CDC |
29 June 2014 |
HHS Appalling Actions Against ME and CFS Patients |
29 June 2014 |
Vote for M.E. Research - Big Break June Contest |
03 June 2014 |
Vote for Research Funding in the Big Break for Charity Contest - Final Days! |
26 May 2014 |
May 5 IOM Open Meeting Boycott and Protest via Thunderclap |
30 April 2014 |
Fully Adopt CCC For ME in N. Ireland - Final Days! |
23 March 2014 |
Great Opportunity - Contact Congress Now |
20 March 2014 |
Promotional Trailer - M.E. Advocacy.org |
13 March 2014 |
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