Below is our latest email. If you didn't receive this information, please consider joining or updating your email information.
PETITION TO SIGN FOR ADOPTING ICC
A new change.org petition has just been posted demanding US government adopt the International Consensus Criteria (ICC) for diagnosing, research and treatment of ME patients. Hashtag for this petition is #PwME4ICC (People with ME for ICC).
We also recommend using these hashtags when sharing on social media: #MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc
Please sign and share widely among your friends and family.
As US health policy affects everyone around the world, everyone around the world is urged to sign. United we can make a difference. CLICK HERE TO SIGN PETITION
OTHER ME NEWS:
1. We’ve added a search function and a privacy policy to our website. Please login and make your preferences known if you haven’t done so already. https://www.meadvocacy.org/join
2. Gabby Klein, one of our volunteers, has posted an important blog on her website entitled “Emperor CDC’s New Clothes”. https://relatingtome.net/2018/07/18/emperor-cdcs-new-clothes
MEadvocacy shares Gabby’s concerns that: “The result of the CDC website update is full of deceptions and in many ways worse than the old toolkit for medical professionals.”
3. Advocates around the world have voiced concerns about the CDC putting into effect the flawed IOM report.
Our blog entitled “Analysis of CFSAC August 2015 Recommendations for the IOM Criteria”, dated Dec 2015 continues to be valid today.
https://www.meadvocacy.org/analysis_of_cfsac_august_2015_recommendations_for_the_iom_criteria
4. A UK petition which can be signed by anyone. “Call for Change” Submission to the UK Parliament by the international ME/CFS community. https://www.change.org/p/carol-monaghan-after-the-debate-call-for-change
As with the #PwME4ICC petition aimed at US government officials, this UK petition also recommends the International Consensus Criteria (ICC) as a resource for physicians. Using the same international consensus criteria across the globe is effective for consistency in research and patient care.
5. MEadvocacy is a project of May12.org which is a 501(c)(3) not-for-profit corporation founded in March 2012. Their mission is to raise global awareness and education for complex immunological and neurological diseases.
May12.org requests signatures for Carl Tuttle’s petition: "Calling for a Congressional investigation of the CDC, IDSA and ALDF"
"Legislation over thirty years has not resolved the Lyme crisis here in the United States as there is tight control over Lyme disease policy refusing to recognize that Lyme disease can cause horrific disability and death. Until Lyme is upgraded to a life-altering/life-threatening infection like AIDS we will see continued health and disability claim rejections stemming from the racketeering scheme associating Lyme to the “aches and pains of daily living.” -- "Lawsuit initiated by Robert F. Kennedy, Jr. against Health and Human Services (HHS)"
https://www.change.org/p/1120418/u/23024031
As always, if you have questions or suggestions, contact us through our website or email us at [email protected]