"The only way to be heard is to actually speak out"
One of MEadvocacy.org’s aims is to empower ME patients and their supporters with a strong voice. For the past three decades, these voices have been ignored. The Department of Health and Human Services (HHS) has continuously neglected and marginalized this disease, by using overly broad definitions, trivializing disease names, and consistently underfunding research.
This has resulted in substandard care for ME patients by the medical community, leaving a generation of ME patients suffering with little hope for the future. Unconscionably, the upcoming generation of patients are facing the same issues as 30 years ago.
We must go over HHS' heads directly to Congress. Tell your Congressional representatives - we have had enough of this abuse. NO MORE!
To make the process easier, we have created a pre-written letter, which you can view in the One Click form below. Simply fill out the form, and click the blue “Sign” button. The app will look up your zip code and send the letter to your representatives.
Note: If you're reading this on the home page, you may have to click on the title of this article to go to the Blog to see the One Click form - sorry for any confusion.
New Improved Letter and Deadline Extended!
With the help of one of our experienced volunteers, we've revised and improved our letter. We've also extended the deadline for an indefinite period.
Even if you've already signed the old letter, feel free to sign this new one too!
Note: The form is for US addresses only.
If you’re having issues, try this direct code https://oneclickpolitics.com/promo/UN
If you're still having issues, send me an email via the contact button on the About page (http://www.meadvocacy.org/about) with information about what error message you may be getting, your device, operating system and browser. This will help the developers figure out what may be going wrong.