About ME Advocacy.org

MEadvocacy is a project of May12.org, a 501(c)(3) not-for-profit corporation whose mission is to raise global awareness and education for complex immunological and neurological diseases, including Myalgic Encephalomyelitis (ME). As such, donations from USA citizens are tax deductible as allowed by law.


Our mission is to advocate for Recognition, Definition and Research for Myalgic Encephalomyelitis.


Our current goals are to promote and support activities such as:

  • Getting Myalgic Encephalomyelitis officially recognized as its own distinct disease in the US. ME has a 60 year history and has been classified as a neurological disease in the World Health Organization's International Classification of Diseases since 1969.
  • Getting a single clear ME expert definition for diagnosis and research, adopted as the official definition for ME. Examples are the Canadian Consensus Criteria (CCC), the International Consensus Criteria (ICC) or an even better definition with the CCC and/or ICC as starting points. ME experts must be used in decision-making as the current “CFS” literature provides a misleading picture of the disease.
  • Getting government funding to study this devastating disease, in the amount of $250 million annually – an amount on par with similar diseases such as Multiple Sclerosis.

Advisory Committee

Joni Comstock, Colleen Steckel, Tracey Ann-Tempel Smith


Gabby Klein, Jerry Seidel, Kathryn Stephens, Dorothy Camenzind, Jeffrey K Nantz, Jordan Jennings, John Gabor, Connie Faast, Lauren Leonard, Wendy Boutilier, Lisa Petrison, Monica Radtke, Olga Pinsky



This is a general contact address for the site admin for website issues, or questions or concerns not answered elsewhere.