About

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ABOUT MEadvocacy.org

MEadvocacy is a project of May12.org, a 501(c)(3) not-for-profit corporation whose mission is to raise global awareness and education for complex immunological and neurological diseases, including Myalgic Encephalomyelitis (ME). As such, donations from USA citizens are tax deductible as allowed by law.

MISSION

Our mission is to advocate for Recognition, Definition and Research for Myalgic Encephalomyelitis.

CAMPAIGNS

Our current goals are to promote and support activities such as:

  • Getting Myalgic Encephalomyelitis officially recognized as its own distinct disease in the US. ME has a 60 year history and has been classified as a neurological disease in the World Health Organization's International Classification of Diseases since 1969.
  • Getting a single clear ME expert definition for diagnosis and research, adopted as the official definition for ME. Examples are the Canadian Consensus Criteria (CCC), the International Consensus Criteria (ICC) or an even better definition with the CCC and/or ICC as starting points. ME experts must be used in decision-making as the current “CFS” literature provides a misleading picture of the disease.
  • Getting government funding to study this devastating disease, in the amount of $250 million annually – an amount on par with similar diseases such as Multiple Sclerosis.

FINANCIALS

MEadvocacy is an all volunteer organization and is a project of May12.org and as such all donations from USA citizens are tax deductible as allowed by law under May12.org nonprofit status as a 501(c)(3) not-for-profit corporation founded in March 2012.  

Funds are used to support MEadvocacy and May12.org activities including website fees, advocacy projects, and reimbursement for related miscellaneous expenses.

VOLUNTEERS

Advisory Committee

Joni Comstock, Colleen Steckel, Tracey Ann-Tempel Smith, Gabby Klein

Volunteers

Olga Pinsky, John Gabor, Alison Orr, Jerry Seidel, Kathryn Stephens, Dorothy Camenzind, Jeffrey K Nantz, Connie Faast, Lauren Leonard, Wendy Boutilier, Lisa Petrison, Monica Radtke, Jenna Jarosinski, Kelly Irene, RJ James


GENERAL CONTACT

This is a general contact address for the site admin for website issues, or questions or concerns not answered elsewhere.