We are looking for people to tell their personal stories about this disease, for television in as many cities in the US as possible. You must be based in the US for this project.

Both patients and/or caregivers who can speak on your behalf are acceptable. If necessary, we can arrange for the interview to be in your home, so you don't have to leave your home.

If you are interested in doing this, please sign up by using the blue Volunteer button in the right hand column.

• Select Spokesperson2.
• Fill out the form with your name, email and address (if you're already a member, the form won't ask for this)

We will refer you to our PR firm who will make arrangements from there.

The deadline for signup is Wednesday March 11, 2015, midnight EDT.