May 12th Awareness Events 2015

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(List courtesy of May12th.org)

May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The diseases included in CIND include Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), Gulf War Syndrome(GWS) and Multiple Chemical Sensitivity (MCS).

This document will be used to record events planned for 2015. If you have an event to add, please either email [email protected] or post the details of your event on https://www.facebook.com/events/1687966454755997/ . For more information about May 12th International Awareness Day please see www.may12th.org or www.facebook.com/may12th.awareness. There is also a list being maintained here https://www.facebook.com/groups/The.M.E.Chat.Room/permalink/848189741885450/?hc_location=ufi .

Note: This list can be accessed at www.bit.ly/May12th2015

Worldwide

  • a request will be submitted to Google asking for a Google Doodle for May 12th. A Doodle is the artwork you see on the Google search page. You can show your support for it by LIKEing Facebook page https://www.facebook.com/GoogleDoodle4May12th or by sending your own request to [email protected]. We need support from around the world.  Sadly they did not give us a Doodle in past years but we will maintain the page and try again every year until they do.
  • Join all 3 Thnuderclaps that are set up to go off on May 12th

○       https://www.thunderclap.it/projects/23688-may-12th-int-l-awareness-day

○       https://www.thunderclap.it/projects/24471-12-mai-internat-me-cfs-tag

○       https://www.thunderclap.it/projects/24360-

Australia

Canada

Italy

Japan

Northern Ireland

Netherlands

Republic of Ireland

South Africa

Sweden

United Kingdom (UK)

  • Cooking up a blue storm to raise awareness and funds for Invest in ME Research Charity for Myalgic Encephalomyelitis (ME) see https://www.facebook.com/CordonBleuForME
  • Invest in ME’s 10th International ME Conference 2015 will take place on 29th May 2015 in Westminster, London. See https://www.facebook.com/events/1025707540777368/
  • To be confirmed - Wainhouse Tower, Halifax, West Yorkshire, UK will lit up May 12th
  • Brighton Wheel on Tuesday May 12th will be lit up. Meeting at 8.00 in front of the Wheel with posters and banners and anything you can think of for Awareness for 8.30 Light Up. There will be a photographer from the Argus taking photos at 8.30
  • The Sea Life Centre in Brighton UK will be lit up during the day May 12th.
  • Fibroduck Foundation has arranged for the Blackpool tower  to be lit up May 12th. It  will be lit up PURPLE, and the Heart BLUE, with FIBRODUCK text running through the heart.We'll also be inviting the press along and giving out information flyers to passers by. We'll also be filming the event so you will all get to see. See http://www.fibroduckfoundation.com/blackpool_tower_may_12th.html .
  • Tymes Trust are holding an event May 11th at Ingatestone Hall. See http://www.tymestrust.org/txt/alert201502invitation.txt 
  • The 25% Group has provided a draft letter to be sent to MP's. See Awareness 2015 on http://www.25megroup.org/campaigning_awareness.html#aware2015

United States (US)

  • New York City - The Caterpillar Walk program is a fundraising campaign designed to raise awareness and support for Fibromyalgia and Chronic Pain. See www.fmcpaware.org/CaterpillarWalkNYC
  • The National Fibromyalgia and and Chronic Pain Association has a list of events in the US on their website http://www.fmcpaware.org/a-day-events-2015.html
  • Washington DC - MEadvocacy.org had a demonstration on April 28.
  • Haines City, Florida and Anaheim, CA has proclaimed the day.
  • #OccupyTheUSDOJ #June2015 is being held in Washington DC on June 1st.   See https://www.facebook.com/events/804422736243381/
  • The Peace Bridge will be lit with all 3 colours on May 12th. 
  • Springfield, OH has proclaimed the day.

 

 

 

Showing 4 reactions

  • Josh Castlehouse
    commented 2018-11-02 19:17:08 -0400
    I’m getting ready for May 12th awareness 2019, in Vancouver BC Canada specifically because I want to get my co-workers and the company I work for involved to help spread awareness as well. A few of my co-workers at http://www.werepairappliances.ca/about.html are willing to volunteer in Vancouver. Do you think the same event centers listed here for 2015 will be active in 2019? You have great info so I was wondering if you knew. Thanks!
  • Jo Best
    commented 2015-05-06 02:03:09 -0400
    Thanks to all involved for all the work put into May 12th events. The Big Sleep For ME is the annual May Awareness & Fundraising event of the Let’s Do It For ME campaign, created in support of Invest in ME (Research) charity’s development of a UK/European Centre of Excellence. Event founder Julia Cottam is too ill the run the event this year, but it’s an international community campaign and info on how to join in may still be found by visiting the site at http://www.thebigsleepforme.com/ which will redirect you to http://ldifme.org/teams/the-big-sleep-for-me/ Thanks again and best wishes for a great May12th 2015.
  • Krystal Gault
    commented 2015-05-05 20:06:06 -0400
  • Krystal Gault
    commented 2015-05-05 20:04:52 -0400
    the first thunderclap link doesn’t work – I think it may be intended for the admin only as it reads ‘edit’ in the url.