It is with very heavy hearts that we report the passing of our friend and fellow ME advocate, Tom Jarrett.
Tom came to MEadvocacy in the fall of 2014 looking for help with a protest against the Pathways to Prevention Workshop (P2P) at the National Institutes of Health (NIH). Despite being in constant pain and needing to lay in a zero gravity recliner, Tom organized on very short notice an awareness event, traveling 10+ hours to protest at the NIH, with himself, church and family members, including his wife and two young boys, in attendance. It was a very cold winter day. A cameraman from the documentary, “Canary in a Coalmine” stopped by to film.
Tom stayed on with MEadvocacy for awhile after that helping out as he was able. It was a pleasure to get to know such a kind, thoughtful and passionate soul, and to see how his family and church supported him. Eventually though, the pain became too much, and he resigned to concentrate on a new distant doctor and new treatment.
Unfortunately, the treatments weren’t successful, and the years of unrelenting pain led him to take his own life. He leaves his wife and two young sons.
Visitation will be held Thursday, July 28 from 4-7 pm with the funeral service Friday, July 29 at 10 am at Zionsville Fellowship, 9090 W Oak Street, Zionsville, IN 46077.
In lieu of flowers, contributions can be made to:
Trust Fund for Austin & Andrew
Checks payable to "Trust Fund for Austin and Andrew Jarrett"
Mailed to c/o College Park Compassion Ministries, 2606 West 96th Street, Indianapolis, IN 46268
ME Research - End ME/CFS Project www.openmedicinefoundation.org/donate-to-the-end-mecfs-project/
Articles, Photos and Videos:
Tom and Louis Zamperini:
Tom and the Know ME Challenge:
Onward Through the Fog blog:
Photos from the P2P Protest
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After 37 years of living with Severe and Profound M?E here is my wordless statement. (2.5 minute video)
Anita Roddam M.E Veteran