GUEST BLOG - from May12.org
May 12, 2019, marks the 27th anniversary of International Awareness Day for Complex Immunological & Neurological Diseases (CIND) and the 7th anniversary of May12.org.
The diseases that form CIND include myalgic encephalomyelitis (ME), chronic Lyme disease (CLD), Gulf War illness (GWI), chronic fatigue syndrome*, fibromyalgia*, Multiple chemical sensitivity (MCS), post-sepsis, and mold/biotoxin illness.
*Note: Most people with ME and/or Lyme disease have been wrongly diagnosed with chronic fatigue syndrome (CFS) or fibromyalgia (FM) because they have not been properly evaluated for ME and CLD.
May 12 was chosen by the late patient and advocate, Thomas Hennessy, Jr., to raise awareness for the CIND diseases, because May 12 was Florence Nightingale’s birthday. After her groundbreaking work as a nurse, Nightingale fell ill and became bedridden for decades from a CIND type disease.
This past March was the 7th anniversary of May12.org becoming a 501(c)(3) nonprofit. We believe it's of utmost importance to unite this umbrella of immunological and neurological diseases (including vaccine injuries - Vaccine Adverse Event Reporting System) as these combined diseases have become a pandemic of epic proportions involving children (even newborn babies), women, and men worldwide.
Similar Predicament of the CIND Diseases
The CIND diseases share acquired dysregulation of both the immune system and the nervous system, often resulting in lifelong disease and disability with similar symptoms. Each disease group focuses on its own separate goals and narrative although all patients experience neglect and abuse on account of the medical system not providing adequate care.
Currently, government/health industries manipulate research and education of the debilitating CIND diseases in order to protect their mutual interests and deter the exposure of the common pathological mechanisms shared by these diseases.
Some of the underhanded tactics used by government health agencies and some industry researchers are:
- creating fallacious and inaccurate case definitions -sometimes fraudulently
- false branding of the diseases to minimize and marginalize the patients
- poor recognition and validation of severity and disability
- withholding proper funding for scientific research and healthcare
- scientific research fraud
- lack of appropriate and successful treatments
- the absence of acceptable identifiable biomarkers
- neglect or poor quality medical care for patients
Not only do these diseases share similar pathological mechanisms, but they also share the same human rights abuses. Patients struggle to get approved for social security disability, public assistance, proper medical care, and treatment. They also experience medical malpractice and abuse by the government/medical establishment. Patients have been shamed, blamed, demoralized and ostracized for their debilitating physical disease.
The Need to Unify
The time is now to take a stand together against the corrupt, twisted and broken medical establishment as this shared immunological and neurological nightmare continues to sweep the globe at an alarming rate causing immeasurable suffering, unthinkable devastation and a life-shattering impact on millions of lives including our children and future generations. When it comes to myalgic encephalomyelitis, chronic Lyme disease, Gulf War illness, chronic fatigue syndrome*, fibromyalgia, post-sepsis and mold/biotoxin illness, exposing the corruption could potentially help bring justice with equitable healthcare, scientific research and social services for the patients and their families. All who are affected by these diseases are victims of the global government and medical establishment’s neglect and abuse.
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