Resources

Criteria Questionnaire*:

 International Consensus Criteria Questionnaire for patients over 18:  "Do I fit the ICC?"

ME Background Information:

Quick Summary Sheets*

Simple ME Fact Sheet

Brief ME History

ME Science Links - published studies on myalgic encephalomyelitis

Chart comparing ME International Consensus Criteria (ICC) and United States IOM Report (SEID)

Important ME Quotes

ME Video Links

*Note: The public may freely share the Summary Sheets and ICC Questionnaire created by MEadvocacy.org as long as the document is not altered, and MEadvocacy.org is credited.

Medical Information:

Myalgic encephalomyelitis: International Consensus Criteria - an even newer definition (2011), starting with the Canadian Consensus Criteria as a basis

Canadian Consensus Criteria - Clinical and Case Definition for ME (2003) - this is the definition the M.E. expert doctors, researchers and clinicians would like to see implemented immediately

  1. Short summary - (towards the bottom of the page)

  2. A Clinical Case Definition and Guidelines for Medical Practitioners (2005)

  3. Full Version

 

Summary of ME Medical Abnormalities in Peer Reviewed Literature

 

Documentaries:

The following documentaries help bring awareness to severe ME.

What About M.E.? - Trailer for documentary released 2016. Facebook page.

Invisible Illness - Stories of Chronic Fatigue Syndrome - 11 minute mini documentary produced by Palo Alto Online, featuring severe ME patient Whitney Dafoe, and his father, ME researcher, Ron Davis.

Blue Ribbon: Sneak Peak and Blue Ribbon (Promo)  - these are trailers for the documentary Forgotten Plague, released in 2015.

Voices from the Shadows trailer (2011) - full documentary available on Vimeo


Political:

There is a long history of government interference in ME, which is still ongoing.

Osler's Web by Hillary Johnson - The definitive account of the history of the government vs. ME. Details of the misdeeds and wrongdoings of the CDC. Patients have a long memory, and this is why they mistrust the HHS.

What's Wrong With ME Information on the CDC Website? This blog post by journalist Mindy Kitei explains the many problems with the CDC Toolkit for "CFS" - CDC Toolkit for CFS: Despite Its Inaccuracies, CDC Won't Remove It

 

Issues:

MEadvocacy Comments Rejecting ICD-10-CM Proposal Changes for CFS and ME and the Addition of SEID

NIH Sidesteps Critical Problems with the ME/CFS Study 

Systemic Bias Continues at NIH

 

Social Media Hashtags:

We also recommend using these hashtags when sharing on social media: #MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc