ME Background Information:
Quick Summary Sheets*
ME Science Links - published studies on myalgic encephalomyelitis
*Note: The public may freely share the Summary Sheets and ICC Questionnaire created by MEadvocacy.org as long as the document is not altered, and MEadvocacy.org is credited.
Myalgic encephalomyelitis: International Consensus Criteria - an even newer definition (2011), starting with the Canadian Consensus Criteria as a basis
- ME International Consensus Primer for Clinical Practitioners - how to understand, diagnose and manage the symptoms of ME - this primer is superior to information on the CDC website.
Short summary - (towards the bottom of the page)
Invisible Illness - Stories of Chronic Fatigue Syndrome - 11 minute mini documentary produced by Palo Alto Online, featuring severe ME patient Whitney Dafoe, and his father, ME researcher, Ron Davis.
There is a long history of government interference in ME, which is still ongoing.
Osler's Web by Hillary Johnson - The definitive account of the history of the government vs. ME. Details of the misdeeds and wrongdoings of the CDC. Patients have a long memory, and this is why they mistrust the HHS.
What's Wrong With ME Information on the CDC Website? This blog post by journalist Mindy Kitei explains the many problems with the CDC Toolkit for "CFS" - CDC Toolkit for CFS: Despite Its Inaccuracies, CDC Won't Remove It
Social Media Hashtags:
We also recommend using these hashtags when sharing on social media: #MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc