Criteria Questionnaire*:
International Consensus Criteria Questionnaire for patients over 18: "Do I fit the ICC?"
ME Background Information:
Quick Summary Sheets*
ME Science Links - published studies on myalgic encephalomyelitis
Chart comparing ME International Consensus Criteria (ICC) and United States IOM Report (SEID)
*Note: The public may freely share the Summary Sheets and ICC Questionnaire created by MEadvocacy.org as long as the document is not altered, and MEadvocacy.org is credited.
Medical Information:
Myalgic encephalomyelitis: International Consensus Criteria - an even newer definition (2011), starting with the Canadian Consensus Criteria as a basis
- ME International Consensus Primer for Clinical Practitioners - how to understand, diagnose and manage the symptoms of ME - this primer is superior to information on the CDC website.
Canadian Consensus Criteria - Clinical and Case Definition for ME (2003) - this is the definition the M.E. expert doctors, researchers and clinicians would like to see implemented immediately
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Short summary - (towards the bottom of the page)
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A Clinical Case Definition and Guidelines for Medical Practitioners (2005)
Summary of ME Medical Abnormalities in Peer Reviewed Literature
Documentaries:
The following documentaries help bring awareness to severe ME.
What About M.E.? - Trailer for documentary released 2016. Facebook page.
Invisible Illness - Stories of Chronic Fatigue Syndrome - 11 minute mini documentary produced by Palo Alto Online, featuring severe ME patient Whitney Dafoe, and his father, ME researcher, Ron Davis.
Blue Ribbon: Sneak Peak and Blue Ribbon (Promo) - these are trailers for the documentary Forgotten Plague, released in 2015.
Voices from the Shadows trailer (2011) - full documentary available on Vimeo
Political:
There is a long history of government interference in ME, which is still ongoing.
Thirty Years of Disdain - How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis by Mary Dimmock Matthew Lazell-Fairman (December 2015) - short version of the document listed next.
Thirty Years of Disdain - How HHS Buried M.E. by Mary Dimmock and Matthew Lazell-Fairman - New publication (updated December 2015) which covers similar territory to Osler's Web, up to the current day.
Osler's Web by Hillary Johnson - The definitive account of the history of the government vs. ME. Details of the misdeeds and wrongdoings of the CDC. Patients have a long memory, and this is why they mistrust the HHS.
What's Wrong With ME Information on the CDC Website? This blog post by journalist Mindy Kitei explains the many problems with the CDC Toolkit for "CFS" - CDC Toolkit for CFS: Despite Its Inaccuracies, CDC Won't Remove It
Issues:
NIH Sidesteps Critical Problems with the ME/CFS Study
Systemic Bias Continues at NIH
Social Media Hashtags:
We also recommend using these hashtags when sharing on social media: #MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc
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