Resources

**Criteria Questionnaire*:**

International Consensus Criteria Questionnaire for patients over 18: "Do I fit the ICC?"

ME Background Information:

Quick Summary Sheets*

Simple ME Fact Sheet

Brief ME History

ME Science Links - published studies on myalgic encephalomyelitis

Chart comparing ME International Consensus Criteria (ICC) and United States IOM Report (SEID)

Important ME Quotes

ME Video Links

*Note: The public may freely share the Summary Sheets and ICC Questionnaire created by MEadvocacy.org as long as the document is not altered, and MEadvocacy.org is credited.

Medical Information:

Myalgic encephalomyelitis: International Consensus Criteria - an even newer definition (2011), starting with the Canadian Consensus Criteria as a basis

ME International Consensus Primer for Clinical Practitioners - how to understand, diagnose and manage the symptoms of ME - this primer is superior to information on the CDC website.

Canadian Consensus Criteria - Clinical and Case Definition for ME (2003) - this is the definition the M.E. expert doctors, researchers and clinicians would like to see implemented immediately

Short summary - (towards the bottom of the page)
A Clinical Case Definition and Guidelines for Medical Practitioners (2005)
Full Version

Summary of ME Medical Abnormalities in Peer Reviewed Literature

Documentaries:

The following documentaries help bring awareness to severe ME.

What About M.E.? - Trailer for documentary released 2016. Facebook page.

Invisible Illness - Stories of Chronic Fatigue Syndrome - 11 minute mini documentary produced by Palo Alto Online, featuring severe ME patient Whitney Dafoe, and his father, ME researcher, Ron Davis.

Blue Ribbon: Sneak Peak and Blue Ribbon (Promo) - these are trailers for the documentary Forgotten Plague, released in 2015.

Voices from the Shadows trailer (2011) - full documentary available on Vimeo

Political:

There is a long history of government interference in ME, which is still ongoing.

Osler's Web by Hillary Johnson - The definitive account of the history of the government vs. ME. Details of the misdeeds and wrongdoings of the CDC. Patients have a long memory, and this is why they mistrust the HHS.

What's Wrong With ME Information on the CDC Website? This blog post by journalist Mindy Kitei explains the many problems with the CDC Toolkit for "CFS" - CDC Toolkit for CFS: Despite Its Inaccuracies, CDC Won't Remove It

Issues:

NIH Sidesteps Critical Problems with the ME/CFS Study

Systemic Bias Continues at NIH

Social Media Hashtags:

We also recommend using these hashtags when sharing on social media: #MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc

Showing 6 reactions

Iain McGinn followed this page 2017-07-07 17:29:28 -0400
La Stein followed this page 2017-01-02 17:55:40 -0500
Susan Kreutzer commented 2016-06-17 00:29:34 -0400
Thanks ME Advocacy.org for putting together some great fact sheets and links. Resources like this really help people within and outside of the M.E. Community to learn, review and share important information about this illness. 👍
Mary Ann Kindel commented 2015-06-23 18:02:00 -0400
Or you can post a link to the document.
Mary Ann Kindel commented 2015-06-23 18:00:51 -0400
Try downloading the pdf and opening it with Adobe Reader (and/or Preview if you have a Mac) on your computer, instead in your browser.
John Buettner commented 2015-06-22 13:50:16 -0400
You can’t copy and paste from any of the PDF documents, rendering them pretty much useless for social media. Please post them in RTF so they will be more useful.