Vote in the Direct Debit Big Break for Charity contest to raise money for June's ME charity - ME Research UK. (This is a different charity than the one for May.) This is a great opportunity to help biomedical ME research just by voting wherever you are in the world. The charity with the most votes wins the £2000 prize. In order to vote online you will need to be logged in with a valid Facebook, Twitter or Google account. When you vote, Direct Debit will use your email address and IP address for the purpose of ensuring your vote is valid and to prevent multiple votes being logged. Personal information will not be used for any other reason.https://www.directdebit.co.uk/DirectDebitPromotions/BigBreak2014/Pages/CauseDetail.aspx?CauseId=727 Or you can vote via text if you're in the UK - instructions are included at the same page. ME Research UK is currently in 1st place with over 600 votes, but it's still early in the month, and anything can happen - the contest ends June 30, 2014, so act now!
Vote in the Direct Debit Big Break to raise money for the ME Association. This is a great opportunity to help biomedical ME research just by voting wherever you are in the world. The charity with the most votes wins the £2000 prize. In order to vote online you will need to be logged in with a valid Facebook, Twitter or Google account. When you vote, Direct Debit will use your email address and IP address for the purpose of ensuring your vote is valid and to prevent multiple votes being logged. Personal information will not be used for any other reason. https://www.directdebit.co.uk/DirectDebitPromotions/BigBreak2014/Pages/CauseDetail.aspx?CauseId=381 Or you can vote via text message from your cellphone/mobile but this particular method is only available for UK residents. Text and other voting involves clicking on your chosen cause's logo. The ME Association’s logo is purple.x https://www.directdebit.co.uk/DirectDebitPromotions/BigBreak2014/Charity/VoteForAGoodCause/Pages/VoteForAGoodCause.aspx The ME Association is currently in 6th place with only a few thousand votes needed to be in 1st place - the contest ends May 31, 2014, so act now!
It's not too late! Sign up for the Thunderclap now, and on May 5 at 9am, tens of thousands of messages will automatically be sent via social media, announcing our boycott and protest of the IOM open meeting for the redefinition of ME. Click here for info on how to participate.
This is a petition to get the Canadian Consensus Criteria definition for ME adopted in Northern Ireland. Anyone can sign - you don't have to be from Northern Ireland. https://secure.avaaz.org/en/petition/Minister_Edwin_Poots_Fully_Adopt_CCC_for_ME_in_NIreland/?pv=2 This petition expires May 31, 2104, so act now!
Those of us with ME have been following the very similar case of the Gulf War Illness renaming and redefinition effort by the IOM. In an amazing reversal, the IOM has recommended a return to the name Gulf War Illness and two existing case definitions. Furthermore, the IOM states that it is not equipped to create case definitions, and that project was a waste of money ($850,000). As our case is extremely similar, we are asking everyone to take action now - contact Congress and tell them, if the IOM can't define GWI, they need to also stop work on "ME/CFS" now. Follow this link for a sample letter and Congressional contact form: http://cfstreatment.blogspot.com/2014/03/making-hay-while-sun-shines.html This artlcle gives more background information and also more ways that you can protest: http://cfstreatment.blogspot.com/2014/03/iom-retracts-chronic-multi-symptom.html We also ask that you share this information widely, on message boards, social media and email.
This is a promotional trailer for MEadvocacy.org, explaining the current major issue facing ME patients and encouraging people to come to this site to advocate. If you like this video and this website, feel free to share this with all your social media.