May 5 IOM Open Meeting Boycott and Protest via Thunderclap

It's not too late! Sign up for the Thunderclap now, and on May 5 at 9am, tens of thousands of messages will automatically be sent via social media, announcing our boycott and protest of the IOM open meeting for the redefinition of ME. Click here for info on how to participate.

Fully Adopt CCC For ME in N. Ireland - Final Days!

This is a petition to get the Canadian Consensus Criteria definition for ME adopted in Northern Ireland. Anyone can sign - you don't have to be from Northern Ireland. This petition expires May 31, 2104, so act now!

Great Opportunity - Contact Congress Now

Those of us with ME have been following the very similar case of the Gulf War Illness renaming and redefinition effort by the IOM. In an amazing reversal, the IOM has recommended a return to the name Gulf War Illness and two existing case definitions. Furthermore, the IOM states that it is not equipped to create case definitions, and that project was a waste of money ($850,000). As our case is extremely similar, we are asking everyone to take action now - contact Congress and tell them, if the IOM can't define GWI, they need to also stop work on "ME/CFS" now. Follow this link for a sample letter and Congressional contact form: This artlcle gives more background information and also more ways that you can protest: We also ask that you share this information widely, on message boards, social media and email.

Promotional Trailer -

This is a promotional trailer for, explaining the current major issue facing ME patients and encouraging people to come to this site to advocate. If you like this video and this website, feel free to share this with all your social media.