Resources

Criteria Questionnaire:

 International Consensus Criteria Questionnaire for patients over 18:  "Do I fit the ICC?"

ME Background Information:

Quick Summary Sheets

Simple ME Fact Sheet

Brief ME History

ME Science Links - published studies on myalgic encephalomyelitis

Important ME Quotes

ME Video Links

 

Medical Information:

Canadian Consensus Criteria - Clinical and Case Definition for ME (2003) - this is the definition the M.E. expert doctors, researchers and clinicians would like to see implemented immediately

  1. Short summary - (towards the bottom of the page)

  2. A Clinical Case Definition and Guidelines for Medical Practitioners (2005)

  3. Full Version

Myalgic encephalomyelitis: International Consensus Criteria - an even newer definition (2011), starting with the Canadian Consensus Criteria as a basis

Summary of ME Medical Abnormalities in Peer Reviewed Literature

 

Documentaries:

The following documentaries help bring awareness to severe ME.

What About M.E.? - Trailer for documentary released 2016. Facebook page.

Invisible Illness - Stories of Chronic Fatigue Syndrome - 11 minute mini documentary produced by Palo Alto Online, featuring severe ME patient Whitney Dafoe, and his father, ME researcher, Ron Davis.

Blue Ribbon: Sneak Peak and Blue Ribbon (Promo)  - these are trailers for the documentary Forgotten Plague, released in 2015.

Voices from the Shadows trailer (2011) - full documentary available on Vimeo


Political:

There is a long history of government interference in ME, which is still ongoing.

Thirty Years of Disdain - How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis by Mary Dimmock Matthew Lazell-Fairman (December 2015) - short version of the document listed next.

Thirty Years of Disdain - How HHS Buried M.E. by Mary Dimmock and Matthew Lazell-Fairman - New publication (updated December 2015) which covers similar territory to Osler's Web, up to the current day.

Osler's Web by Hillary Johnson - The definitive account of the history of the government vs. ME. Details of the misdeeds and wrongdoings of the CDC. Patients have a long memory, and this is why they mistrust the HHS.

What's Wrong With ME Information on the CDC Website? This blog post by journalist Mindy Kitei explains the many problems with the CDC Toolkit for "CFS" - CDC Toolkit for CFS: Despite Its Inaccuracies, CDC Won't Remove It

 

Issues:

NIH Sidesteps Critical Problems with the ME/CFS Study 

Systemic Bias Continues at NIH


Showing 6 reactions

  • followed this page 2017-07-07 17:29:28 -0400
  • followed this page 2017-01-02 17:55:40 -0500
  • commented 2016-06-17 00:29:34 -0400
    Thanks ME Advocacy.org for putting together some great fact sheets and links. Resources like this really help people within and outside of the M.E. Community to learn, review and share important information about this illness. 👍
  • commented 2015-06-23 18:02:00 -0400
    Or you can post a link to the document.
  • commented 2015-06-23 18:00:51 -0400
    Try downloading the pdf and opening it with Adobe Reader (and/or Preview if you have a Mac) on your computer, instead in your browser.
  • commented 2015-06-22 13:50:16 -0400
    You can’t copy and paste from any of the PDF documents, rendering them pretty much useless for social media. Please post them in RTF so they will be more useful.