Tell NIH to Cancel P2P Workshop for ME/CFS

Tell Dr. Francis Collins, Director of the National Institutes of Health (NIH), to stop the Pathways to Prevention Workshop (P2P) for ME/CFS. For numerous reasons, this workshop is bad science and bad for ME/CFS patients. The results of this workshop will negatively affect ME/CFS patients for decades to come.

Here is more background on this campaign: http://www.occupycfs.com/2014/06/02/tell-dr-collins-to-stop-p2p/

You may edit the letter to personalize it. After you send it, please share it widely on message boards, social media and email.

Remember to respond to the verification sent to your email address, or the letter won't be sent.

Note to those outside the U.S., you need to input a U.S. address. If you can't participate in this letter, please sign the Avaaz petition, if you haven't already done so. 

Expires July 8, 2014, so act now!


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  • commented 2014-07-01 18:31:42 -0400
    The developer assures me the message is being sent correctly.
  • commented 2014-06-11 18:39:56 -0400
    I’m working with the app developer to make sure this is not an issue.
  • commented 2014-06-11 02:13:46 -0400
    I got a page when it was sent that said “Your message has been sent to 2 recipients: Harkin, Tom (Senator, IA)
    Pitts, Joseph R. (Representative, PA)” But since they are the only ones that need to be verified, this is probably just an artifact of that process, and it actually went out to the other 3 as well?
  • commented 2014-06-10 19:52:32 -0400
    I think you get a thank you page when it’s sent, so if you see that, you know all is well. I can see on the back end how many people sent the letter, how many did the verification and so on. Only the Representatives need to be verified because they need a US address.
  • commented 2014-06-10 19:07:14 -0400
    I sent this, but according to the responses I received after confirming with my e-mail it shows it was sent to Tom Harkin, Joseph Pitts, and Cedric Richmond. Is there some way to confirm my letter actually went to Dr. Collins?
  • commented 2014-06-10 16:06:54 -0400
    This is a further insult attempted to be forced upon the ME/CFS community. We know who we need to research our disease. We should be consulted with, prior to any research involving our illness.
  • commented 2014-06-10 14:54:47 -0400
    This needs to stop. A non expert jury concept for a complex disease is insanity.