There has been a recent research paper (Stanford study from Dr. Montoya's lab, brain abnormalities for CFS) that quite a few news sites have picked up on. During some FB discussions some of the main criticisms are the stock photos used that trivialize the severity of this disease, and also verbiage mentioning hypochondria or the disease not being real ( that term was used from a quote by Michael Zeineh, lead author of study). 1) It would be nice if we have a project to collect photos that would represent the moderate to severe ME patients. I am guessing we would need waiver statement to allow free use of the photos for the media. And the photos would need to be of high quality and visually captivating/appealing. It would also be a great resource for the doctors and researchers to use as reference when they release their info to the press... (eg. go to this link for access to free pro-photos representing ME patients.) 2) Another item that would be useful for doctors and researchers are guidlelines for when speaking to the public/media. To provide terminology that validates this disease and what terminology/phrases that are a detriment to public perception which would dwindle support for ME research (mentioning hypochondria, psychosomatic, not a real disease).
1) PR photos of people with ME, 2) helping ME researchers/doctors w/ PR verbiage
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