Press Room

Press Releases

April 26, 2015 - Act Up for M.E. - Boots On The Ground In DC

December 8, 2014 - Disabled Americans Protest US National Institutes of Health's P2P Meeting

May 7, 2014 - What Is Myalgic Encephalomyelitis and Why Should You Care About Something You Can't Pronounce

April 29, 2014 Chronically Ill Patients to Boycott May 5, 2014 Public Meeting of the Institute of Medicine Committee

Media Coverage

October 17, 2014 - Chronic Fatigue: NIH Literature Review Faulted - Miriam Tucker - Medscape Medical News (note: you need to sign up with a free account to read this article)

May 16, 2014 - Baffling Chronic Fatigue Syndrome Set for Diagnostic Overhaul - Katherine Harmon Courage - Scientific American

May 8, 2014 - May 12: A Disease Gets Its Day But Who Cares? - Llewellyn King - White House Chronicle

March 28, 2014 With Significant Advances But Little Money, Chronic Fatigue Syndrome Research Tries Crowdfunding - David Tuller - Buzzfeed

March 25, 2014 - Doctors, drugs slowly coming around to chronic fatigue - Erin Allday - SFGate (San Francisco Chronicle)

March 18, 2014 Parliament Hearing for Confined Danish ME Patient Karina Hansen Tomorrow - Penny Swift - Guardian Liberty Voice

March 3, 2014 - The Strange Case of the NIH And An Elusive Disease - Llewellyn King - White House Chronicle

Feb. 8, 2014 - CFS Patients War Against Controversial U.S. Health Research Plan - Penny Swift - Guardian Liberty Voice

January 30, 2014 - Does Chronic Fatigue Syndrome Need A New Name? - Miriam E. Tucker - NPR

January 27, 2014 - How "Chronic Fatigue Syndrome" Obscures A Serious Illness - David Tuller - Buzzfeed

Dec. 6, 2013 - David and Goliath, Or the Sick and the Beauracracy - Llewellyn King - White House Chronicle

Testimony Submissions to Appropriations

The U.S. House and Senate Committees on Appropriations are responsible for passing spending bills. The bills passed by the Appropriations Committee regulate expenditures of money by the government. Individuals and/or organizations have the opportunity to submit written testimony to each of these subcommittees.

MEadvocacy testifies to the urgent need for a systemic overhaul at the Department of Health and Human Services (HHS), including the National Institute of Health (NIH) and the Centers for Disease Control (CDC), in regards to its funding and handling of the disease myalgic encephalomyelitis (ME).

2017
U.S. House Appropriations Committee FY 2018 Submission

2016

Blog: MEadvocacy Reaches Members of Congress http://www.meadvocacy.org/meadvocacy_reaches_members_of_congress

U.S. Senate Appropriations Committee FY 2017 Submission

U.S. House Appropriations Committee FY 2017 Submission

U.S. Appropriations Subcommittee on Agriculture, Rural Development, Food and Drug Administration, and Related Agencies - Department of Health and Human Services

FY 2017 Submission

2015

Blog: Want To Get $250 million for ME? Let's Reach Congress Now!

http://www.meadvocacy.org/want_to_get_250_million_for_me_let_s_reach_congress_now

U.S. Senate Appropriations Committee FY 2016 Submission

U.S. House Appropriations Committee FY 2016 Submission

 

Press/Media Contact

 

Resources and Background Information

Information about ME, and the current issues are under the Resources tab.

 

 

 

 


Be the first to comment

Please check your e-mail for a link to activate your account.