April 26, 2015 - Act Up for M.E. - Boots On The Ground In DC
December 8, 2014 - Disabled Americans Protest US National Institutes of Health's P2P Meeting
October 17, 2014 - Chronic Fatigue: NIH Literature Review Faulted - Miriam Tucker - Medscape Medical News (note: you need to sign up with a free account to read this article)
May 16, 2014 - Baffling Chronic Fatigue Syndrome Set for Diagnostic Overhaul - Katherine Harmon Courage - Scientific American
May 8, 2014 - May 12: A Disease Gets Its Day But Who Cares? - Llewellyn King - White House Chronicle
March 28, 2014 With Significant Advances But Little Money, Chronic Fatigue Syndrome Research Tries Crowdfunding - David Tuller - Buzzfeed
March 25, 2014 - Doctors, drugs slowly coming around to chronic fatigue - Erin Allday - SFGate (San Francisco Chronicle)
March 18, 2014 Parliament Hearing for Confined Danish ME Patient Karina Hansen Tomorrow - Penny Swift - Guardian Liberty Voice
March 3, 2014 - The Strange Case of the NIH And An Elusive Disease - Llewellyn King - White House Chronicle
Feb. 8, 2014 - CFS Patients War Against Controversial U.S. Health Research Plan - Penny Swift - Guardian Liberty Voice
January 30, 2014 - Does Chronic Fatigue Syndrome Need A New Name? - Miriam E. Tucker - NPR
January 27, 2014 - How "Chronic Fatigue Syndrome" Obscures A Serious Illness - David Tuller - Buzzfeed
Dec. 6, 2013 - David and Goliath, Or the Sick and the Beauracracy - Llewellyn King - White House Chronicle
Testimony Submissions to Appropriations
The U.S. House and Senate Committees on Appropriations are responsible for passing spending bills. The bills passed by the Appropriations Committee regulate expenditures of money by the government. Individuals and/or organizations have the opportunity to submit written testimony to each of these subcommittees.
MEadvocacy testifies to the urgent need for a systemic overhaul at the Department of Health and Human Services (HHS), including the National Institute of Health (NIH) and the Centers for Disease Control (CDC), in regards to its funding and handling of the disease myalgic encephalomyelitis (ME).
Blog: MEadvocacy Reaches Members of Congress http://www.meadvocacy.org/meadvocacy_reaches_members_of_congress
Blog: Want To Get $250 million for ME? Let's Reach Congress Now!
Resources and Background Information
Information about ME, and the current issues are under the Resources tab.