IOM Diagnostic Criteria for ME/CFS - Live Webcast February 10, 2015, 11am EST

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On Tuesday February 10, at 11am EST, The Institute of Medicine will release its report on Diagnostic Criteria for ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome).

For your convenience here is a time zone converter: http://www.timeanddate.com/worldclock/converter.html

This is the culmination of a highly contested year and a half effort by the NIH to redefine chronic fatigue syndrome.

Expectations are low that the recommendations from the Chronic Fatigue Syndrome Advisory Committee and the ME experts letter were followed.  Rich Carson of Prohealth has tweeted that a top source told him there will be a new name for CFS, which is not ME.

You may watch live via webcast here: https://www.iom.edu/Activities/Disease/DiagnosisMyalgicEncephalomyelitisChronicFatigueSyndrome/2015-FEB-10.aspx

Tune in somewhat earlier than 11am to receive instructions on how to ask questions during the webcast. You may also start accessing the report at 11am.

Meeting agenda: https://www.iom.edu/~/media/Files/Activity%20Files/Disease/MECFS/Public%20Briefing%20Agenda_Final%20version.pdf

MEadvocacy.org will have a representative provided by our PR firm at the meeting, prepared with a list of questions to ask.

For the record, we are not happy with the design of this meeting. It’s going to be difficult for cognitively disabled patients to watch the webcast, ask questions and read the report all at the same time. Reporters were given the opportunity to read the report a day beforehand, however the report is embargoed until the meeting.

 

 


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  • commented 2015-02-10 02:24:45 -0500
    Miriam Tucker confirmed she got the advance copy of it and will be reporting on it.
  • commented 2015-02-09 16:08:02 -0500
    I’m glad we have an ME Advocacy representative attending!
  • commented 2015-02-09 15:41:44 -0500
    I would expect ME reporters like David Tuller and Miriam Tucker to be present, but don’t know for sure.
  • commented 2015-02-09 15:37:01 -0500
    Do we have reporters involved?