Andrew is 8 years old, and he challenges you to donate to the National PR Campaign for ME. http://youtu.be/mmhHLrAskCA
Andrew is the son of Tom Jarrett, the ME patient who recently held a protest of the P2P Workshop at the NIH campus in Bethesda, MD. Andrew was also present at the protest.
http://cfstreatment.blogspot.com/2014/12/us-disabled-hold-protests-at-bethesda.html
I know just how Andrew feels as I also had a parent with ME (my mother). Actually it's more like having only half a parent. They're there, but they're not. They feel poorly most of the time and have trouble joining in normal activities with the family. Not that we complained, as that's just how things always were, and kids are adaptable. But looking back I wonder how my life would have been different if my mom was healthy.
It was only decades later, after I got sick too, that I realized my mom had the same disease as me. She never did get officially diagnosed, and eventually died of cancer. Not that there was any treatment she could have gotten anyway. I feel sad that although I could finally put a name to her disease, I could never help her.
This has been going on for decades and there are unknown tens of thousands of children in the same boat. This disease is known to run in families. What if Andrew also ends up with ME?
It doesn't have to be this way. The National PR Campaign for ME is seeking donations to get ME officially adopted as it's own distinct disease, along with a true ME definition and greatly increased federal funding for research. This is the only way I can see that we're going to break of this cycle - please click on the link to find out more, and to donate.