CFS-ME Registry

Good day ME Advocacy members, My belief is that ME/CFS/FM will be treatable in the near future. There are simply too many people suffering with this illness for it to go on like this. More funding for research can make a difference. One of the cornerstones of research is being able to find suitable candidates for their studies. It’s been far too long that we haven’t had a global registry for CFS/ME/FM. I am reaching out to you regarding a new initiative. I’ve started that global registry: http://www.cfsme-registry.info and I invite you and your members to sign up (zero fees). I am actively contacting CFS/ME/FM associations and support groups, researchers and doctors now. If you’d like to discuss anything, feel free to email me: Michael.Lapenna@cfsme-registry.info. I hope you can inform anyone you know who has CFS/ME. Thank you and take care.


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  • published this page in Suggestion Box 2017-06-05 06:22:36 -0400